Mama Mondays

Or Manic Mondays

or Man, I can't believe I still feel hung over from the party Saturday night Monday ...no? Well...


So Man, I can't believe I still feel hung over from the party Saturday night Monday.

Let's have a weekend wrap up:

My b-day party was on Saturday.

It.Was.Epic.

I appreciate all that came to help me...welcome (?) 30.

The evening was great. I had a great time. We closed down Oaks and I definitely paid for it on Sunday. Did my hangover suck? Yes. Was it worth it? Yes.

Good thing I only turn 30 once. I know there are pictures out there....post them...or maybe not.

I saw a video....I hope it never gets leaked ;-)


Next

Manic Monday

I still feel a bit...craptacular today. I'm extra tired. My tummy still doesn't feel 100%.

I'll get over it....is it 4:30pm yet? I'm ready for my jams.



Finally

Mama Monday


As I mentioned in my first post, I'm a mom. I'm going to assume most of my readers know about my son and his struggles. If not, you are more than welcome to read about him here.

In short, he was unexpectedly born with Spina Bifida and also has Hydrocephalus which is controlled by a programmable shunt.

He will be 11 months old on Wednesday and it has been a rollercoaster of learning, accepting, anger, surgeries, specialist appointments....It's a lot.

I don't think people understand how different our lives are comparing us to an average set of parents.

He was in and out of the hospital for the first two months of his life. I didn't get the average maternity leave...I was with him for three weeks before I went back to work. I had to get to know him in those three weeks and for most of that, I played his nurse. I had to give him dressing changes and administer antibiotics. Something a new mother SHOULDN'T have to do.

He had to go back to Chicago monthly for rechecks. In January he had his first shunt revision. He’s had MRI’s and bladder tests and ultrasounds.

In March he had to start wearing glasses. Yet another specialist to add to the ones we already have.

He has therapy every Tuesday.

He had his seventh surgery in August. He was 9 ½ months old.

He goes to see his specialists often.

I don’t think that people understand that this life we have.

It’s not free. We had back to back deductibles and out of pocket payments we had to meet. We have bills and bills and bills. Every time I turn around. We don’t qualify for state help.

We can’t afford to do things like we used to. We have to feed him too.

And he grows like a damn weed, so he’s got to have clothes to wear.

We’re busy. He keeps us busy.

We don’t intentionally not call people. We don’t intentionally not want to hang out with our friends. We do. Our time is just limited.

Being a mom is pretty hard stuff.

Being a mom to a special needs mom is 10x harder.

I just wish people could understand that.


-e